Thank you so much for your valuable information. I am keeping it for future use and my heart and prayers are with you and Karena. We really are responsible for our own research and what will help us and you have helped by sharing your experiences.
Blessings,On Tue, Jan 21, 2014 at 6:32 AM, 3lilloves <holly241@gmail.com> wrote:
My son who is almost 13 had NF1. He was diagnosed as a baby. I have asked on here a few times with no luck. I give my son the LLV and the DDR prime because I know it is the best of the best. I also only give him organic fruits and veggies as well as organic 100% grass fed beef and organic milk to stay away from any added growth hormones and chemicals. I have done a lot of research and found that New Zealand Propolis supplements have been shown to halt tumor growth related to NF1 due to the high CAPE content in it. It has to be from New Zealand because it is the purest and has the highest concentration of CAPE which is what is supposed to help stop tumors from growing. The one that has been studied is called BIO 30 New Zealand propolis. Look it up and you will see all the info available on it. I give my son the BIO 100 which is the newest form and is supposed to have higher levels of CAPE in it. The company "Manuka Health" gives discounts to patients with NF because of the research they have done on the benefits of taking it. You can contact a woman named Annette at Annette@manukahealth.co.nz and tell her that you saw that they offer a discount on the BIO 30 and the BIO 100 for people with NF1. She will be able to tell you if your son is old enough to start taking it and how much he would take depending on his weight. With the Doterra I don't know what to suggest for your son since he is so young. I am sure someone on here can better advise you on it. All I know is that when my son started going through puberty, he started developing some tumors. Since I started using Doterra and the BIO 100 propolis his tumors have stopped. If you have ANY questions or concerns please feel free to ask me. My e-mail is holly241@gmail.com One piece of advise I can give is don't look up NF on the internet and freak yourself out. I went through about a year of depression when my son was diagnosed because of all of the scary stuff and pictures that I found online! The only put the extreme cases online and it will overwhelm you.--
On Sunday, January 19, 2014 2:29:17 PM UTC-5, Jason & Karena Forster wrote:I'm wondering if anyone on here has dealt with or has a client that deals with Neurofibromitosis?
I have a 8month old baby that may have it. Her daddy had it and it is hereditary.
What protocols would you suggest? ME book doesn't list just that neither does everything essential.
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