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I need some ideas. My 17 year old daughter has Down Syndrome, and has been diagnosed with non-neurogenic neurogenic bladder (NNB). What this basically means is that she has a voiding dysfunction. She is most often unable to urinate upon command. The muscles involved, are working opposite of what they should be. Hence, the bladder itself is relaxing, when it should tighten, and the urethral sphincter is tightening, when it should relax and release urine.
In normal voiding function, bladder filling is accommodated at low bladder pressures with
a bladder outlet that remains closed while bladder emptying requires a coordinated and
sustained contraction of the bladder muscle with concomitant relaxation of the external
urethral sphincter.
Katie is continent, and high functioning. She knows when she needs to use the bathroom, but because the valve doesn't just open up, she has to push and push for a long time to get any urine out. She has been on Flomax for several years, and it has helped. But for the past six months or so, we've seen that the Flomax is no longer making much of a difference. Her doctor wants her on Rapaflow – by the way both of these meds are for men with prostate issues. But our insurance is denying the new med. So Katie is stuck in misery, sometimes being forced to hold great quantities of urine for hours because her urethral sphincter and bladder are not in working together.
She just went through a horribly traumatic and invasive test to determine for sure what was happening with her bladder. I really don't see the insurance allowing us to switch meds, so I need an alternative way to treat her. I've thought and thought about the oils, but I just can't figure out what exactly would help with this situation. It is a bit unique. Katie does not get bladder infections and so far her kidneys are okay. I'm hoping someone here will have a epiphany and know what to do. Thanks
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