I posted a comment a while back on this. we just had our yearly check up with my sons neurologist (he has NF1) they just found out that people with NF are almost always deficient in vitamin D. He said that vitamin D affects the nerve sheath which is where the tumor grow. He is hoping that if patients maintain the appropriate vitamin D levels, they will see some positive things happen. HE doesn't know what they would be but he said a lot of research is being done on vitamin D deficiency in general and a lot of things are being linked to it. My son was very deficient so he is now on 4000 iu's a day for 6 months then we go back for a re-check...
On Sunday, January 19, 2014 at 2:29:17 PM UTC-5, Jason & Karena Forster wrote:
-- On Sunday, January 19, 2014 at 2:29:17 PM UTC-5, Jason & Karena Forster wrote:
I'm wondering if anyone on here has dealt with or has a client that deals with Neurofibromitosis?
I have a 8month old baby that may have it. Her daddy had it and it is hereditary.
What protocols would you suggest? ME book doesn't list just that neither does everything essential.
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